Let's Talk: Raising a Child with Retinopathy of Prematurity (ROP)
Resource List

Books and DVDs

Children with Visual Impairments: A Guide for Parents

Edited by M. Cay Holbrook, Ph.D., 2006 Woodbine Press
Information and advice on raising children with visual impairments written by professionals and parents. Chapters include Your Child's Development, Family Life, and Nurturing Your Child's Self-Esteem.

Independent Movement and Travel in Blind Children: A Promotion Model

Joseph Cutter, 2007 Information Age Press
This book is about the effect of movement on development and the importance of movement experiences for the development of independent movement and travel in blind children. It has a clear premise: blind children must become "active movers" if they are to become independent "travelers."

Letting Your Child's Wild Side Out: Raising the Wild/Confident VI Baby, Toddler and Preschooler

Powerful message to families to not overprotect their child who doesn't see. In this 30 minute DVD, see Milagro grow from baby to downhill skier, gaining a strong sense of self-confidence and eagerness to learn at every stage.

Small Victories: Conversations About Prematurity, Disability, Vision Loss, and Success

Mary Lou Dickerson, 2000 American Foundation for the Blind
Life stories of individuals who were born prematurely and their families who discuss their challenges and triumphs. Dickerson was born prematurely herself, and is visually impaired as a result. She is also the mother of a daughter born prematurely.

Support & Information

American Council of the Blind (ACB)


American Foundation for the Blind (AFB)

California Deaf-Blind Services



(Canadian National Institute for the Blind)


Hadley School for the Blind

Jewish Guild for the Blind
Parent Tele-Support Groups

Lilliworks Active Learning Foundation

List servs and Parent Groups


National Association for Parents of Children with Visual Impairments (NAPVI)

National Federation of the Blind (NFB)

Penrickton Center for Blind Children

Preemie Baby/Preemie Child/Preemie Parent Support


The Association for Retinopathy of Prematurity and Related Diseases


Yahoo Groups

Feel free to contact the ROP seminar moderators and presenters:

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